This is HOPE.

Today is the Day…September 18, 2019 Seven months ago, on a cold Friday in February, we took our four month old daughter to see the developmental specialist team at UVA. Her head was growing quickly, she was gaining weight slowly, and our regular pediatrician recommended seeing the specialist team to rule out anything serious.  That’sContinue reading “This is HOPE.”

“Brain Surgery”

I have chosen to share my daughter’s story on this platform for a number of reasons. First and foremost, I hope that her story may reach another parent experiencing similar trauma. I would want that parent to know, you are not alone in this heartbreak, and you are not alone in how you process this,Continue reading ““Brain Surgery””

A Reflection on My First Year of Motherhood

I originally wrote this entry privately in August of 2019, about two weeks before my daughter had her third brain surgery. I share it with my readers now as we all close the door on 2019 and whatever it has meant to us, the joys and the sorrows. I share this part of our storyContinue reading “A Reflection on My First Year of Motherhood”

“What contractions? I am sweeping!” or “Saturday…”

My little girl is a warrior, but that is not her whole story, and it is not the beginning of her story either. The beginning of her story was a warm fall day in October of 2018, a Saturday. She was born two days later, on a Monday evening. It began like this. The dayContinue reading ““What contractions? I am sweeping!” or “Saturday…””